Disease/Disability Information

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    The structure of the services index and definitions of the terms contained herein were originally published in A Taxonomy of Human Services: A Conceptual Framework with Standardized Terminology and Definitions for the Field by the Information and Referral Federation of Los Angeles County, Inc., 3035 Tyler Ave., El Monte, CA 91731; Copyright (c) 1983, 1987, 1991. No part of this listing of human services terms and definitions may be reproduced, stored in a retrieval system, or transmitted in any form or by any means, electrical, mechanical, photocopying, recording or otherwise without the prior written permission of the Information and Referral Federation of Los Angeles County, Inc.

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    Taxonomy Code: LH-2700.1700

    Programs that provide information about the causes and origins, preventive measures, symptoms, screening/diagnostic procedures, and/or methods of treatment or management including the latest research for specific illnesses or disabling conditions.

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    There are 22 matching records.
    Service NameDescriptionLocationProgramAgency
    Advisory/Advocacy ServicesProvides education and advocacy services for people affected by epilepsy and seizure disorders.AlbanyADVOCACYEPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK
    Counseling Servicesparticipants meet with TLCIL staff to discuss goals, concerns, and experiences. staff can provide referrals as neededFranklinPEER COUNSELINGTRI-LAKES CENTER FOR INDEPENDENT LIVING
    Disease/Disability Care ServicesProvides information about cancer, diagnosis, and treatment rights, including in Spanish. Helps patients to know what questions to ask and the answers to listen for. Offers teleconferences on varying topics. Also offers information and referrals to resources that the patient and their family may need.New YorkCANCER RESOURCE INFORMATIONCANCER CARE
    Disease/Disability Care ServicesSAIL provides short-term case management and service coordination services, as well as linkage and referral to other service systems (DOH, OMRDD, OMH, etc.) Center staff will assist with eligibility determinations and gathering the necessary documentation to access funded case management and service coordination services. If requested, center staff will continue to work with individuals with disabilities as advocates once they are enrolled in funded services. SAIL provides advocacy and assistance to individuals with disabilities, family members, and other interested parties who are returning to community-based settings from nursing homes. The center also provides advocacy and assistance to persons at risk of nursing facility placement so that they can remain in the community with necessary supports.WarrenCASE MANAGEMENT AND SERVICE COORDINATIONSOUTHERN ADIRONDACK INDEPENDENT LIVING CENTER
    Disease/Disability Care ServicesProvides coordinators to assist and support families to understand the current system of services and benefits, and how to navigate them, also links families to medical and rehabilitation services in the community. Also educates families, individuals, and care providers on brain injury and its impact, connects families and individuals to other support groups, and offers support and advocacy for families dealing with the school system.AlbanyFACTS: FAMILY ADVOCACY, COUNSELING AND TRAINING SERVICESBRAIN INJURY ASSOCIATION OF NEW YORK STATE
    Disease/Disability Care ServicesThe American Heart Association of the Capital Region offers information related to cardiovascular health and diseases. AlbanyHEART DISEASE INFORMATION AND CPR INSTRUCTIONAMERICAN HEART ASSOCIATION OF THE CAPITAL REGION
    Disease/Disability Care ServicesSAIL provides information and assistance concerning long term care planning for individuals with disabilities, family members, and other interested parties. Information and assistance is provided for establishing Health Care Proxies, Living Wills, Supplemental Needs Trusts, and accessing long term care services. SAIL provides information and assistance to persons with disabilities, family members, and other interested parties concerning Medicare, Medicaid, and long-term care insurance. The center also provides insurance counseling and advisement for choosing the most appropriate coverage, as well as information concerning co-insurance and gap policies.WarrenLONG TERM CARE PLANNINGSOUTHERN ADIRONDACK INDEPENDENT LIVING CENTER
    Disease/Disability Care ServicesThe American Lung Association provides information on asthma, tobacco, air quality, and lung diseases. A number of programs are offered to help people quit smoking, learn to live with and control their asthma and other lung health problems.AlbanyLUNG HEALTH PROBLEMS INFORMATIONAMERICAN LUNG ASSOCIATION IN NEW YORK, ALBANY
    Disease/Disability Care ServicesProvides care in the prevention, diagnosis and treatment of osteoporosis. Specialized exercise program, bone densitometry and research programs available. Offers educational seminars and support groups in Rockland and Westchester.RocklandOSTEOPOROSIS CENTERHELEN HAYES HOSPITAL 1
    Disease/Disability Care Servicesprovides information and assistance for people requiring assistive devicesFranklinTECHNOLOGICAL SOLUTIONSTRI-LAKES CENTER FOR INDEPENDENT LIVING
    Education/Prevention ServicesProvides education and screenings to help individuals with various health concerns, such as cancer, heart disease, diabetes, blood pressure, etc.EssexADULT AND SENIOR SERVICESESSEX COUNTY HEALTH DEPARTMENT
    Education/Prevention ServicesEncore does outreach for underinsured and uninsured women for breast cancer education and screenings. SchenectadyENCORE-TAKE CHARGE OF YOUR HEALTHYWCA NORTHEASTERN NY
    Education/Prevention ServicesThe Lyme Prevention Program provides public education about Lyme disease. RensselaerLYME PREVENTION PROGRAMRENSSELAER COUNTY DEPARTMENT OF HEALTH
    Education/Prevention ServicesThe Ovarian Cancer Awareness Initiative conducts educational activities through outreach to the general public and healthcare providers about early detection and treatment of ovarian cancer. ColumbiaOVARIAN CANCER AWARENESS INITIATIVECOLUMBIA COUNTY COMMUNITY HEALTHCARE CONSORTIUM
    Education/Training ServicesOffers information, referral and outreach to help prevent premature births, birth defects, and other pregnancy problems.AlbanyBIRTH DEFECTS EDUCATION AND AWARENESSMARCH OF DIMES - NORTHEASTERN NEW YORK DIVISION
    Education/Training ServicesEducational programs are available for students, school employees and community groups. The purpose is to provide seizure recognition and information about appropriate first aid and information in order to foster acceptance of those living with the disorder.AlbanyEDUCATIONAL PROGRAMSEPILEPSY FOUNDATION OF NORTHEASTERN NEW YORK
    Health Care ServicesHudson Valley Health Specialties, Inc. and Ulster Rehabilitation Clinic: Services include primary medical care, psychiatric, dental, vision, and psychology as well as speech, occupational and physical therapies among others. Also offers specialized autism training and services.UlsterHUDSON VALLEY HEALTH SPECIALTIES, INC.ARC OF ULSTER-GREENE
    Health/Medical Care ServicesThe Columbia Greene Diabetes Coalition provides monthly education and support groups and professional diabetes intervention education. Monthly education and support meetings alternate between Hudson and Catskill. In January, March, May, July, September and November meetings are held in the 2nd Floor Conference Room in the Columbia County Human Services Building, 325 Columbia Street, Hudson. In February, April, June, August, October and December in the 4th Floor Conference in the Greene County Office Building, 411 Main Street, Catskill.ColumbiaDIABETES EDUCATION AND SUPPORTCOLUMBIA COUNTY COMMUNITY HEALTHCARE CONSORTIUM
    Housing ServicesSAIL offers individuals with disabilities, family members, and other interested parties information, advice, and assistance with overcoming architectural barriers occurring in any privately or publicly owned residence, business, constructed facility, or proposed building or facility. Where requested, the center provides detailed plans and written advice, as well as information concerning funding sources and availability. SAIL provides information, advice, and assistance to individuals with disabilities and family members concerning and/or retaining housing, including accessible and affordable housing. When necessary, assistance is provided for completing housing applications and communicating with landlords. Information is also provided concerning tenant and landlord rights and responsibilities.WarrenARCHITECTURAL BARRIER CONSULTATIONSOUTHERN ADIRONDACK INDEPENDENT LIVING CENTER
    Information/Referral ServicesOffers information in various format about colitis, including ulcerative colitis, and Crohn's Disease.AlbanyCROHN'S AND COLITIS EDUCATIONCROHNS AND COLITIS FOUNDATION OF AMERICA-UPSTATE/NORTHEASTERN NEW YORK CHAPTER
    Information/Referral Servicesmaintains and makes available information regarding services for people with disabilities, and recommendations for other agencies and services based on specific needsFranklinINFORMATION AND REFERRAL SERVICESTRI-LAKES CENTER FOR INDEPENDENT LIVING
    Support ServicesProvides various support services to individuals with cerebral palsy or developmental disabilities and their families through case management, education, reimbursement vouchers for good and services not covered by Medicaid, and information and referrals to other resources and services that a family may require.ClintonFAMILY SERVICESCEREBRAL PALSY ASSOCIATION OF THE NORTH COUNTRY

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